Childhood Cancer Action Days 2018
The Northern Nevada Children’s Cancer Foundation will be advocating for important childhood cancer issues before Congress this Tuesday, April 24. NNCCF Executive Director, Mary Powell, and childhood cancer survivor, Johnny Hartman, will meet with Nevada state legislators on Capitol Hill to advocate for research dollars designated to childhood cancer.
“It is important our representatives are in touch with the needs of families in our community experiencing childhood cancer,” said Powell. “Access to better healthcare, improved treatments, and the hope for a cure are all issues we encounter in the work we do in northern Nevada.”
From the moment Hartman completed treatment and was considered “cancer free” he wanted to be an advocate for the cause. Sharing his story in Washington D.C. helps remind politicians that childhood cancer isn’t just a statistic on paper, but it affects real, living and breathing, standing-in-front-of-you kids.
“I am passionate about being an advocate for childhood cancer because I want to do everything in my power to make sure children do not have to go through what I faced during my treatment,” said Hartman. “I feel honored to be a part of an organization that devotes their energy to help pediatric cancer patients and their brave families.”
This year, communities from across the United States come together in one unified voice to support the STAR Act. “The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act is the most comprehensive childhood cancer bill ever taken up by Congress. It would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences and enhance the quality of life for childhood cancer survivors.” – AllianceForChildhoodCancer.org
The main focus of Childhood Cancer Action Days is having the STAR Act passed by the House of Representatives and have a proper appropriation of funding.
“I am most looking forward to bringing awareness to our country’s lawmakers and hopefully making a difference in the lives of young cancer warriors all over the United States by getting important and helpful legislation passed,” said Hartman.
Powell and Hartman are prepared and ready to show members of Congress that childhood cancer needs immediate attention for research and funding. Although the Northern Nevada Children’s Cancer Foundation is not a state or federally funded nonprofit, advocating for awareness and research is part of the foundation’s mission.