Northern Nevada Children's Cancer Foundation
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Jayme
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Meet Jayme, a true warrior in her battle against ‘Bob the Blob’.  Despite facing unimaginable challenges – from crippling migraines to a rare tumor – Jayme’s resilience shines through. With the incredible support of UCSF neurosurgeons, the NNCCF community, and the steadfast love of her family, she’s faced each hurdle head-on. Though the journey ahead is uncertain, Jayme’s determination to fight until a cure is found is unwavering.  Read about her story as told by her parents below:

Tell us about your journey:

Jayme has suffered and was being treated for migraines for about 3 1/2 years. On 11/27/2023, Jayme had an MRI of her head, and within three hours, we were told she had a massive tumor, which Jayme named “Bob the Blob.” UCSF neurosurgeons got involved immediately, and on December 18, 2023, Jayme underwent a biopsy. It was determined that she has a Keratin Positive Giant Cell tumor of the Clival bone in her skull. She is suffering from horrible migraines, loss of voice, and loss of balance. In January, we spent 2 1/2 weeks at Renown Hospital trying to get the pain under control. She had a blood vessel feeding the tumor embolized on February 12, 2024, and underwent a 13-hour surgery on February 13, 2024. She was left sedated under general anesthesia until February 14th, and 30 hours after her surgery started, she woke up. We found out before the debulking surgery that she is the first reported case of this type of tumor in this location. They were able to remove 75 to 80% of the tumor, but she is left with 20 to 25%, which they are unable to remove. The Doctors are unsure of what will happen now. The tumor does not respond to typical chemotherapy or radiation, and there is no cure for the remaining cancer. She will continue to fight this until a cure can be found. She will undergo scans every six months to see if the tumor has continued to grow, as well as a yearly scan to see if it is metastasizing to other locations within her body. There may be additional surgeries and possible therapies to try and remove the balance of the tumor.

How has NNCCF impacted your family’s journey?

Without NNCCF’s continued support, it would have taken a toll on our ability to continue to be present through Jayme’s hospital stays, surgeries, and recovery.

The events they have held have given Jayme the opportunity to connect with other warriors, hear their battles, and see them conquer this horrible diagnosis of childhood cancer and see the light at the end of the tunnel.

Please add anything else you would like us to include in your warrior feature

Jayme has been strong and courageous since her diagnosis and understands this is not the end of her battle.

From diagnosis to victory: Haley’s battle with Burkitt’s Lymphoma at 17 was a journey of courage and resilience. Supported by NNCCF, she triumphed over surgeries, chemo, and setbacks. Today, as a pediatric oncology nurse, she’s a fierce advocate for young cancer warriors while inspiring strength and determination through sharing her own journey.

Tell us about your journey

“I was diagnosed with Burkitt’s Lymphoma in 2015 at the age of 17, right before the start of my senior year in high school. I was treated at UCSF Benioff Children’s Hospital, away from home, and had to be careflighted there a few times. I had a tumor on my intestines and had to have an initial surgery to remove the tumor. Due to the tumor being larger than they originally thought, I ended up having to have an ostomy bag in order to give my intestines time to heal. I had 5 rounds of chemotherapy at UCSF but was hospitalized many times in Reno in between treatments due to complications, including neutropenic fevers and seizures. After 6 months of chemo, multiple surgeries, having to be in a wheelchair due to being so weak, and having multiple seizures, I was told I was cancer-free! Today, I still have long-term side effects from the treatment I received.
While going through treatment, I appreciated everything that my nurses did for my family and me. I also became extremely passionate about advocating for childhood cancer. Today, I am a pediatric nurse at Renown and absolutely love taking care of pediatric oncology patients, sharing my story with them, and being able to relate to them on a deeper level.”

How has NNCCF impacted your journey?

“NNCCF has been there for me and my family both emotionally and financially. Throughout treatment, they were able to help pay for medical bills, as well as travel expenses for having to be treated out of town. They also always welcomed us with open arms whenever we needed someone to talk to or a shoulder to cry on. Throughout college, I received the Inspire Scholarship, which helped me achieve my goals of getting a nursing degree and getting my dream job as a pediatric oncology nurse. To this day, I still feel so welcome around everyone at NNCCF, and I know that whenever I need them, they are there for my family and me. NNCCF has also helped me connect with other young adult cancer survivors and fighters and helped me to make new, amazing friends. The cancer community is not one anybody would ever want to be part of, but NNCCF helps to make it a great community and family.”

Bailey is a fiercely strong warrior who, at just five years old, was considered a 4-time survivor of Neuroblastoma.  Now, at 25 years old, he is graduating from Colorado State University!  His story is nothing short of miraculous!  His mom shared his journey with us below:

Tell us about your warrior and their journey

My son, Bailey, was diagnosed at 9 months of age on December 29, 1999, with Stage IV Neuroblastoma, n-myc non-amplied, favorable histology. We were told not to expect him to live through the night because of the extent of his disease and if he somehow survived the night, that he would be paralyzed from the primary tumor compressing his spine and he certainly would never see his first birthday. At diagnosis he had a tumor on his left skull, a tumor behind his right eye, the primary tumor in his chest wrapped around his aorta and compressing his spine, hundreds of tumors in his liver (his liver was so large the original biopsy scar is on the left side of his abdomen), a tumor on his left shin and full bone marrow involvement. He survived that first night at UCSF and was treated at that time as intermediate risk because of his age with 8 rounds of chemo, surgery and inter-operative radiation. He was No Evidence of Disease (NED) for 7 months and relapsed. He was then treated as high risk and did another 6 rounds of chemo, bone marrow transplant and stem cell transplant, external beam radiation, followed by 6 months of Accutane. He was NED before his bmt and sct, then 10 months after completing Accutane had another surgery to remove what was determined through pathology to be a ganglioneuroma on his left lung. He then was NED for 10 more months, when a new tumor showed up behind his liver. We were told by surgeons at both UCSF (Dr. Farmer) and MSKCC (Dr. LaQuaglia) that it was inoperable and the best they could do was try to biopsy to see what it was. Our amazing surgeon at UCSF (Dr. Farmer) ended up being able to remove the ENTIRE mass on 1.16.04 and Bailey started 2 years of Accutane. The mass was 98% ganglioneuroma and 2% neuroblastoma. He completed the 2-year course of Accutane in February of 2006. So, at the age of 5, he was considered a 4-time survivor of Neuroblastoma! On February 11, 2009, Bailey had his LAST MIBG Scan – 5 years after his last surgery and 3 years since finishing treatment! He is now 18 years since his last treatment, 25 years old, and will graduate on May 11, 2024 from Colorado State University with a Bachelors Degree in Human Development and Family Sciences. He has worked closely with Coach Matt Mumme for both the Nevada football team, and now the Colorado State football team as an assistant for the past 8 years and hopes to continue working in the sports field after graduation.

How has NNCCF impacted your family’s journey?

NNCCF (KRM and Angel’s Kiss) have been a part of our family’s journey for almost all of Bailey’s years of treatment and post-treatment long term affects. We could not have made it through this journey without the never-ending support of such an amazing organization.

NNCCF will always hold a very special place in all of our hearts! Their amazing support of our local community is like no other! Northern Nevada is very fortunate to have such an amazing organization to support local families through their worst times. Then, they continue to be there as these warriors beat their battles with financial support to help them succeed in college! Not only were they there for us during the worst of times, they’ve continued to be there for Bailey throughout his college career with continued financial support via scholarship.

Victoria was diagnosed with leukemia when she was 15 years old. Throughout her cancer journey, Victoria’s motivation and commitment to her education did not waver. Last December, Victoria graduated from the University of Nevada with a Bachelor of Science dual degree in Human Development & Family Science and Biology with a minor in Developmental Disabilities. Her dedication to working with individuals with disabilities stems from her own long-term side effects from treatment. Victoria remarked that her scholarship helped her succeed both in education and in life, stating “As a kid with cancer, I never would have imagined I would be living in my own apartment with two degrees. NNCCF helped with my tuition throughout my educational journey and gave me the confidence to pursue my many educational goals”.

Loukas loves Star Wars, coloring, drawing, playing outside with his brothers, having Nerf wars, and karate. In 2019 he was diagnosed with osteosarcoma at the age of four. Upon diagnosis, he was no longer able to attend preschool, instead, he and his family were forced to face this difficult diagnosis and treatment. Luckily, he has incredibly loving and supportive parents as well as two older brothers who are helping him every step of the way. After surgery and a difficult treatment regime, this little padawan was cancer-free for almost two and a half years then sadly relapsed in mid 2023. Now at eight years old, he continues to battle cancer courageously. But Loukas is a true fighter, and the force is strong with this one!

Corrine is a beautiful and brave warrior who was diagnosed with Hodgkin’s Lymphoma at the start of her freshman year of college.  While it may have turned her world upside down, Corrine is as strong as they come and is battling her diagnosis with grace and ferocity. Learn about Corrine’s journey in her own words:

Tell us about your journey:

My journey was very difficult because I had just moved into my dorm at the University of Arizona. Far away from my family and on my own. Once I realized I was really sick and needed to get checked out, it all started. I was sent to the emergency room and stayed there for a week with the company of my mom. This is where I found out my diagnosis of Hodgkin’s lymphoma. I was devastated and heartbroken. I then had one day to clean out my dorm and headed to renown the next day. I found out it was stage three and I would have to go through 6 months of chemotherapy, 12 rounds total. I thought chemo would be the hardest part of my journey, but the hardest part was losing my long hair and seeing everyone be able to live their lives in college while mine was put on hold. I had to learn to be able to focus on getting better and not focus on other people’s lives. These last four rounds of chemo I’ve had were some of the toughest. Taking an emotional toll on my body. But I’m so thankful to be feeling better and praying that my latest scan is clear.

How has NNCCF impacted your family’s journey?

NNCCF has impacted my family’s journey by allowing my mom to feel like there is a shoulder she can always lean on for help. They have helped my mom immensely by helping her anytime she is struggling emotionally or financially. What they have done for me is something I will never be able to thank them enough for. My two beautiful wigs. Hair has always been a big part of me, and I would’ve never imagined losing it. But sadly, I did, and it was one of the biggest challenges I’ll ever have to go through. Thanks to NNCCF they noticed how much I was struggling feeling uncomfortable being bald and they made an appointment for me to get my wigs. It was one of the best days of my life and an awesome experience. I got to try on different sizes, some with bangs, some without, and many different colors. They made me feel beautiful and confident again, and I can’t thank them enough. NNCCF is now my family and will forever be my family.

Meet Nicholas, a remarkable 22-year-old cancer warrior whose journey unfolds with courage, resilience, and an unwavering spirit. Just after graduating with a Bachelor’s Degree in criminal justice and a minor in psychology, Nicholas faced a foe he never anticipated—cancer.
A former football player for South Dakota College, Nicholas’ life took an unexpected turn with his cancer diagnosis. Despite the devastating news, he has emerged as a fighter with an incredible sense of humor that lights up even the toughest moments. Nicholas is not just facing adversity; he’s tackling it head-on with a determination that inspires everyone around him.
Enduring numerous rounds of inpatient chemotherapy, Nicholas has shown unparalleled strength, proving that even in the darkest times, his spirit remains unbreakable. His journey has led him to UCSF for a transplant this month, a significant step that reflects both his resilience and the cutting-edge treatments available to him.
As we stand on the sidelines, we can’t help but marvel at Nicholas’s strength and be inspired by his journey. A beacon of hope for others facing similar battles, Nicholas showcases the power of the human spirit to triumph over adversity.
To Nicholas, you are more than a cancer warrior; you are an inspiration. Your humor, strength, and tenacity light up the path for others navigating the challenging terrain of cancer. The community is here, cheering you on with unwavering support as you face this next chapter.
In the playbook of life, Nicholas is not just a player; he’s a captain, leading with courage, determination, and an infectious sense of humor. We salute you, Nicholas, as you continue to inspire us all. 💪🌟

Meet Lane, the newest little rockstar in our community! This sweet baby has a love for board books, dancing, and chomping down on fruits and veggies—talk about a tiny Epicurean! Lane and his family just landed in Reno, but their introduction to the city involved more hospital visits than they could have imagined.

At a mere eight months old, Lane faced the unexpected battle of leukemia, throwing his parents into a whirlwind of hospital stays, tests, and scans. Can you believe it? This little trooper recently aced surgery and is gearing up for a 24 to 36-month superhero journey through treatment. Lane might be small, but his spirit is mighty, and he’s taking on each day with infectious enthusiasm!

Now, here’s where the superhero capes come in! We’re rallying together to ensure that families like Lane’s get the support they need. Show your superhero move and make a donation to the Northern Nevada Children’s Cancer Foundation! Let’s keep the good vibes flowing, the dance parties rocking, and the fruits and veggies munching.

Join us in making a difference in the lives of incredible little warriors like Lane as we #KnowTheGold. Your donation isn’t just a contribution; it’s a high-five to courage, a fist bump to resilience, and a promise that no family fights alone.

🌟 Meet Dustin, a Brave Musical Warrior! 🎸💪

In 2020, Dustin’s life took an unexpected turn when he was diagnosed with a brain tumor. Since then, this sweet teenager has shown extraordinary strength and resilience, proving that even in the face of adversity, the human spirit can shine brightly. ✨

Over the past few years, Dustin and his family have journeyed through three different hospitals in California and Nevada, facing six brain surgeries, two phases of chemotherapy, radiation treatments, and almost daily infusions. Through it all, Dustin has remained positive, wearing a radiant smile that lights up the hearts of his hospital team, nurses, and everyone lucky enough to be part of his journey. 🌈😊

Dustin’s love for music has been a constant source of joy and inspiration. When he talks about music, his eyes light up, and his enthusiasm is contagious. 🎵🌟 Despite the challenges he faced, Dustin’s upbeat spirit and positive attitude have been unwavering, a testament to his incredible courage.

In his own words, Dustin shares, “Music has been my anchor throughout this journey, and it reminds me that every note is a step closer to healing.”
Let’s join hands in celebrating Dustin’s triumph over adversity! 🎊💖 Your unwavering positivity and love for music inspire us all. Keep shining, Dustin, you’re a true hero! 🌟

– Written by Caleb’s mom, Katrina

My son, Caleb, was diagnosed with Acute Myeloid Leukemia (AML) in August of 2022. Only about 20% of children with leukemia have this form. He spent a total of 153 days in the hospital from August to April and had countless doses of chemotherapy, blood transfusions, imaging, and surgeries. He was in remission as of April, and everything was looking good.

In August of 2023, his platelet levels started to drop for no known reason. In September, the doctors decided to do a bone marrow biopsy and found out that the cancer returned. Since he relapsed, the best course of action was a bone marrow transplant. Luckily for us, his siblings are matches, and his 14-year-old brother volunteered to be his donor. Caleb is now at Stanford having chemo to prepare for transplant day. We will have to be in the Palo Alto area for three months.

We are so thankful to the Northern Nevada Children’s Cancer Foundation for all the help they have given my family, from the first diagnosis to Caleb’s relapse. They have helped pay our bills, so I was able to spend more time with him at the hospital, medical bills that continue to pile up, traveling expenses for us to get back and forth to Stanford, and somewhere to stay while at Stanford. I truly don’t know what I would do without these amazing people to support not only Caleb but myself and my family during this trying time.



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