On this #WarriorWednesday we’re celebrating Jayme! Jayme was diagnosed in November 2023 with a brain tumor and underwent a 13-hour debulking surgery on February 13, 2024, where she was sedated until the afternoon of the 14th. She is the first documented case of this type of growth in this location from what the team of doctors told her and her family. The unknowns of how this will continue to affect her life are daunting, but this warrior is fighting with everything she has.

Tell us about your warrior and their journey: 
Jayme was diagnosed with a substantial giant cell tumor of the clival in November 2023. She underwent a 13 hour debulking surgery on February 13, 2024 and was sedated until the afternoon of the 14th. They were able to remove 75% of the tumor. The remaining 25% has various crucial nerves that control breathing, swallowing, eye sight and tongue movements encased in it. Jayme is still having issues with her back from the compression at the stop of her spine and still has extreme headaches and dizziness at times. We are also dealing with anxiety and depression. Part of the area in the brain that controls emotion was extremely compressed given the size of Bob the blob. We are working with her team both at UCSF and here in Reno/Carson City to get the right medications to help with this. We also found her right vocal cord in paralyzed and will more than likely never function correctly.

Jayme is the first documented case of this type of growth in this location from what the team of doctors told us just before her surgery. The unknowns of how this will continue to affect her, probably for the rest of her life is daunting, but this warrior is fighting with everything she has. Because she is the first case, no one knows what to except, but we did get some good news this passed weekend. Her MRI on September 8th showed a slight decrease in size. BOB THE BLOB is getting smaller!!!! This doesn’t mean it will continue to shrink and it’s still possible for it to grow. Waiting to find out how often scans will take place to track its movement. Hoping the copper coil they placed to stop the blood flow to the growth will help it continue to shrink or at least remain the same.

How has NNCCF impacted your family’s journey?
The continued support has helped us at every turn. Whether it be a family event or just cheering her on through emails brings a smile to her face.

Is there anything you would like to add?
Thank you to our family, friends, and teachers who have been there for us and work with us. I never truly understood “It takes a village” until we were faced with this. Thank you to our village. You guys ROCK!!!!

Donate to help a warrior like Jayme today!