Northern Nevada Children's Cancer Foundation
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Jayme
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About This Warrior

Meet Jayme, a true warrior in her battle against ‘Bob the Blob’.  Despite facing unimaginable challenges – from crippling migraines to a rare tumor – Jayme’s resilience shines through. With the incredible support of UCSF neurosurgeons, the NNCCF community, and the steadfast love of her family, she’s faced each hurdle head-on. Though the journey ahead is uncertain, Jayme’s determination to fight until a cure is found is unwavering.  Read about her story as told by her parents below:

Tell us about your journey:

Jayme has suffered and was being treated for migraines for about 3 1/2 years. On 11/27/2023, Jayme had an MRI of her head, and within three hours, we were told she had a massive tumor, which Jayme named “Bob the Blob.” UCSF neurosurgeons got involved immediately, and on December 18, 2023, Jayme underwent a biopsy. It was determined that she has a Keratin Positive Giant Cell tumor of the Clival bone in her skull. She is suffering from horrible migraines, loss of voice, and loss of balance. In January, we spent 2 1/2 weeks at Renown Hospital trying to get the pain under control. She had a blood vessel feeding the tumor embolized on February 12, 2024, and underwent a 13-hour surgery on February 13, 2024. She was left sedated under general anesthesia until February 14th, and 30 hours after her surgery started, she woke up. We found out before the debulking surgery that she is the first reported case of this type of tumor in this location. They were able to remove 75 to 80% of the tumor, but she is left with 20 to 25%, which they are unable to remove. The Doctors are unsure of what will happen now. The tumor does not respond to typical chemotherapy or radiation, and there is no cure for the remaining cancer. She will continue to fight this until a cure can be found. She will undergo scans every six months to see if the tumor has continued to grow, as well as a yearly scan to see if it is metastasizing to other locations within her body. There may be additional surgeries and possible therapies to try and remove the balance of the tumor.

How has NNCCF impacted your family’s journey?

Without NNCCF’s continued support, it would have taken a toll on our ability to continue to be present through Jayme’s hospital stays, surgeries, and recovery.

The events they have held have given Jayme the opportunity to connect with other warriors, hear their battles, and see them conquer this horrible diagnosis of childhood cancer and see the light at the end of the tunnel.

Please add anything else you would like us to include in your warrior feature

Jayme has been strong and courageous since her diagnosis and understands this is not the end of her battle.



Donate to help a warrior like Jayme today!



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3550 Barron Way #9a Reno, Nevada 89511
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