Meet Jully, a brave 4-year-old little girl who was recently diagnosed with myelodysplastic syndrome (MDS) and acute myeloid leukemia (AML).  She has been at Renown since the day of her diagnosis, where her brave mother has not left her side while waiting to be transferred to a specialty center for a bone marrow transplant.  Read more about her story as told by her mother here:

Tell us about your warrior and their journey: 

Jully is our brave 4-year-old little girl and definitely the toughest 4-year-old I know. She was diagnosed with Myelodysplastic Syndrome (MDS) & Acute Myeloid Leukemia (AML).
We were at a routine dentist appointment to replace Jully’s spacer and remove a previously missed root. I had her put under Anesthesia, and when the anesthesiologist started to remove Jully’s breathing tube, her nose started bleeding and would not stop. We were then rushed to Renown Emergency, where we were told that the reason Jully wouldn’t stop bleeding was because she had anemia and then was diagnosed with MDS/AML. Since that day on March 29, 2024, we have not left the hospital and have now been here at Renown pediatric oncology for 38 days and counting.
I have since had to go on unpaid leave with my job, and my daughter and I have not been home since. She has definitely been a trooper going through 5 blood transfusions and 4 platelets transfusions. She has also had a chemotherapy port installed in her chest and neck. She has undergone 10 days of intensive chemotherapy, where she ended up losing the majority of her hair and a few other side effects like less energy and some nausea. Still, other than that, nothing stops this little girl from enjoying her life on a daily basis.
We are now waiting to be transferred to Stanford Medical, where Jully has to undergo a Bone Marrow transplant that will hopefully help her fight off the leukemia for good.
She has definitely livened up the place on the 4th floor of the Renown Pediatric Oncology department. She has become a patient favorite of some of the Doctors and Nurses here.
I would also like to add that if it was not for the WONDERFUL CHILD LIFE DEPARTMENT’s various activities and just being a person to talk to and vent about this entire process, I know our stay for these 38 days would not have been as painless as it has been going through something like this.
We are so thankful to all the DOCTORS, NURSES, CNA, and CHILD LIFE STAFF here at Renown; you have no idea how truly amazing you are.

THANK YOU!

How has NNCCF impacted your family’s journey?

Oh goodness, what is there not to love about NNCCF, ever since the moment I talked with your foundation on the phone, I have had a huge weight lifted off of my shoulders. I was the only parent working in the household when all of this happened. When I found out I was not being paid even though I was on an emergency medical leave, I was stressing so hard about how to take care of my family’s rent, our car insurance, phone bill, and just various costs for being here in the hospital. I honestly didn’t know what to do, and all I could do was pray and leave it to God and when your foundation approved us for help with bills throughout Jully’s treatment, just writing this now it brings tears to my eyes, your foundation truly is a GODSEND because without you it would have been 10 times harder in this entire process and because of NNCCF you all have given my family hope to focus on what’s truly important and that is Jully’s care.
I can’t thank you enough from the bottom of my heart!

Donate to help a warrior like Jully today!