775-825-0888
3550 Barron Way #9a • Reno, Nevada 89511
Press release –
(Reno, NV) – Mike Krukow, the Emmy Award-Winning broadcaster and former major league pitcher for the San Francisco Giants, sent a heartwarming video to local children battling cancer. Krukow, a friend of the Northern Nevada Children’s Cancer Foundation (NNCCF), filmed himself reading a children’s book to lift the spirits of children and their families who are currently undergoing cancer treatments and in isolation, due to the COVID-19 pandemic.
“I appreciate the opportunity to share one of my favorite stories with the little ones and their families. I hope to bring them happiness during this time and make them feel less isolated,” said Krukow. “I know these children and their families are already facing tough times and the least I can do is bring more joy to their family.”
The video was posted today on Facebook: www.facebook.com/nvkidscancer
It is also available on the NNCCF website: www.nvchildrenscancer.org/familyresources
Two years ago, Mike and his wife, Jennifer Krukow, were inspired by the efforts of San Francisco Giants pitcher, Buster Posey and his wife, Kristen Posey, to support childhood cancer patients and pediatric cancer research. The Krukows have put their heart and support, as well as that of the Giants, behind the efforts of the northern Nevada community and NNCCF to support children battling cancer. They created A Giant Event for Childhood Cancer, along with NNCCF and supporters, to raise funds for childhood cancer research and local children. The next event is scheduled for fall of 2020.
Krukow is assisting NNCCF’s efforts to provide comfort to families and foster ways for local children to feel connected and less isolated. NNCCF is providing services at full capacity to assist families with financial and emotional support. NNCCF is using multimedia communications, social media, and virtual events, to assist its mission and serve local families.
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The Northern Nevada Children’s Cancer Foundation is the only non-profit in the region solely dedicated to helping local children and their families affected by childhood cancer. NNCCF’s programs and services include the Family Assistance Fund, Inspire survivorship program, Hope for the Holidays program and emotional support through end-of-treatment celebrations and family activities. For more information, call (775) 825-0888, visit www.nvchildrenscancer.org or follow on social media @NVKidsCancer.
This November NNCCF is celebrating the childhood cancer caregivers in our community. Caregivers for children with cancer can be parents, siblings, family members, friends and neighbors. They come from all walks of life and put their time, love and energy into helping a child who is battling cancer. They are truly heroes and deserve a great amount of gratitude and respect.
The role of a family caregiver is very demanding and can be very stressful. Children with cancer experience long hospital stays, repeated clinic visits, emergency room visits, quarantined days at home, travel to and from treatment and much more. Caregivers manage all of the stresses of caring for the child – making sure they are getting the treatment they need to beat cancer – all while managing their own life, needs and responsibilities.
There are many ways contribute or help a family with a child battling cancer. Meal preparation, transportation, light housekeeping, care of siblings and similar services help lift some of the burden off of these families. Allowing a caregiver to take a break – even if just an hour a day – lifts spirits and helps them feel refreshed. Supporting caregivers and helping with the small things can make a big impact.
This month, thank a caregiver! Make sure you tell them that you are grateful for all they do, and if you can, offer a token of your gratitude (bring them a coffee or buy them lunch). THANK YOU, to the family caregivers helping children with cancer, NNCCF appreciates you!
The significance of the toy closet goes beyond the smiles we see in our office when a child picks out a toy. The toys we provide to children battling cancer and their siblings, are a reward for their bravery. Many kids know that when they leave their home for treatment or for a doctor’s visit, they can stop by our office and check out the toy closet.
Our staff finds little moments of gratification – as should the donors who help keep it stocked – when a child walks through the door and beelines for the closet. They deserve it. A childhood cancer diagnosis is a family diagnosis and the whole family is affected by the demanding treatment schedules, upheaval of everyday life, and the emotional burden it causes. A child battling cancer and their siblings should be rewarded for their bravery.
When we open both closet doors, it only takes a few seconds before each child has a toy in hand. They may teeter between choices for a few minutes but resolve to pick their favorite in the end. Sometimes we receive requests to save a toy “for next time.” A truly heartwarming experience for our staff is when a child stops in the office and asks to also pick out a toy for their sibling.
Toys provided have a greater significance to families than a way to amuse a child during a car ride to the hospital. The toys help serve an escape from the trials at hand.
“You have been something for [our son] to look forward to each time he gets treatment because he knows that after he is brave at the clinic he gets to go to NNCCF and pick out a new book or toy.”
A word that has been tossed around by parents to explain how the toys help the child through a tough hospital stay is “bribe.” We do not typically use that term because we think of the toys as a reward, but when you’re a parent trying to calm your screaming child (every day, week, etc.) who is terrified of needles – if a toy is a bribe, let the toy be a bribe.
Parents have told us that they have utilized toys with multiple components to help go through the steps of treatment. There are many steps in a “typical” treatment day. The process can range from having blood drawn, port accessed, medication given, vitals taken, etc. For example, the LOL Surprise Dolls (appropriate for children ages 5 an up) have multiple toys individually packaged in the surprise container. One mom told us that as they move through each step of the process, she will give her daughter a toy to open. Then when the toy is complete, the little girl plays with her reward as she waits for her infusion to be over.
Recently, we provided a large basket of toys for a family headed in for surgery and a long hospital stay. The father expressed his gratitude about the toys being a “life-saver.” As his child was prepped for surgery, cared for after surgery, prepped for an infusion, etc., he was able to emotionally occupy his child who didn’t understand why she couldn’t get out of bed, why everything hurt, and why they weren’t at home.
We receive many toy donations during the holidays, however around this time of year we need donations of new toys for all age groups. Each year at the end of spring, we experience a bit of a toy-cabinet famine. There’s a little more space between each toy – the misfit toys of Christmas past sit on the shelf, waiting to be chosen (queue “The Most Wonderful Day of the Year” from Rudolph and the Island of Misfit Toys).
Throughout the year, we receive toys from individual donors, community partner toy drives, and our Amazon Wish List. One of our Community Partners, Learning Express Toys in south Reno, has a unique toy drive throughout the year for our foundation. At the store, they keep a bin behind the counter and offer a discount for any toys purchased for our foundation. Once the bin is full, they give us a call.
We have toys for every child – infant to young adult. We tend to stay away from plush toys, as they are hard to wash in a hospital setting. Many of our families stay in the hospital for weeks at a time and need toys that can be cleaned in a sink or with a disinfectant wipe.
As we provide financial and emotional support for these local families in the fight, we are grateful that the toy closet is one small way that we can put a smile on their face. If you would like to donate toys or host your own toy drive, please contact us! You can check out our Amazon Wish List here.
The Covid-19 crisis has become the greatest healthcare challenge in modern history. As the number of people infected increases across the U.S., childhood cancer patients and their families are suddenly facing new challenges to an already devastating disease.
First and foremost, cancer patients are among those at the highest risk of effectively fighting a virus. They face the possibility of serious illness and complications compared to someone who is healthy because of weakened immune systems from treatment. The majority of families who have a child in treatment for cancer are on high alert and experiencing a surge of stress and fear for their child’s life.
Childhood cancer does not stop for Covid-19 and patients still need treatment. Doctors and patients are facing the difficult challenge of evaluating the risk of missing treatment against the possible exposure to the virus. If it is decided that treatment is necessary, families must leave the safety of their home and travel to hospitals and clinics. Travel has become increasingly difficult and can heighten the risk of exposure. With airline flights not an option at this time, some northern Nevada families are driving up to 10 hours, one way, to receive the specialty care necessary for their treatment.
If accommodations are needed while traveling for treatment, families have been struggling to find safe and affordable alternatives as many locations of Ronald McDonald Houses and hotels are closed due to the pandemic. Once patients are at the hospital, social activities and programs have been canceled and they are facing strict isolation and loneliness. Most hospitals are only allowing one support person to accompany each patient, so families are facing the difficult decision of who will stay with the child.
In northern Nevada, the economic strains families are facing due to Covid-19 is extremely high. Many families we serve are out of work due to the closures of casinos, bars, restaurants and other tourism fed industries. We have seen a drastic increase in requests for assistance with groceries, utilities, rents and mortgages.
NNCCF is also facing a severe decrease in donations due to the economic impact and stay at home order. In just one month, two of our most successful community partner fundraising events were canceled resulting in a $100,000 loss to the organization. With the uncertainty of the future, it is probable that more fundraising events will be forced to cancel and the organization’s revenue will be greatly reduced.
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“Jonah’s life and ours were affected in so many ways. But it happened so fast that it was really wasn’t noticed. We adapted every day and still are,” said Troy Howell, Jonah’s Father.
“For Jonah it was his football. He loves to play football and had just started a new league. He loves training and being around his fellow players. Not being able to train really affects him. He lost a ton of weight and muscle. I see the sadness in his eyes when he must ask for someone to help him get up. We just take one day at a time ‘cause we don’t know what he will feel like each day.”
From the financial support and emotional support, NNCCF has been there for Jonah and his family to lean on throughout his diagnosis and cancer treatment. Since the COVID-19 outbreak, Jonah has continued to follow guidelines from his doctors and healthcare providers to stay safe and healthy.
Press release –
(Reno, NV) – The Northern Nevada Children’s Cancer Foundation (NNCCF) and San Francisco Giants broadcasters, Mike Krukow, Jon Miller, Duane Kuiper and Dave Flemming, will virtually host the third annual A Giant Event for Childhood Cancer. This event supports children who are battling cancer in northern Nevada.
The San Francisco Giants broadcasters will tell unheard stories, recollect memorable baseball moments and guarantee a couple of horselaughs between the broadcasters and fans alike. This event will feature one-of-a-kind auction items, including sports memorabilia, custom gold ribbon guitars autographed by baseball legends including Barry Bonds, experience packages and much more.
A Giant Event for Childhood Cancer will also feature special guests, Buster Posey, catcher for the San Francisco Giants, and his wife Kristen Posey, who have made it their mission to raise awareness and funds for childhood cancer.
When
Wednesday, February 10, 2021, 6PM-7:30PM
Where
Virtual broadcast and online auction – link available upon purchase
Tickets, Social and Sponsor Packages
Online: nvchildrenscancer.ejoinme.org/giantevent
Call: (775) 351-1064
Learn More: www.NVChildrensCancer.org/Giants
United in the fight against cancer, A Giant Event for Childhood Cancer will benefit NNCCF and local children, along with supporting childhood cancer research through the Posey Family Research Grants. NNCCF has provided $5.6 million in direct financial assistance to families in northern Nevada affected by childhood cancer and has raised $3 million in support for finding better treatments and a cure for childhood cancer. NNCCF assists approximately 120 families each year who actively seek assistance for costs associated with medical bills, travel related to treatment, loss of work and income due to their child’s diagnosis, emotional support programs and more. The Posey Family Research Grants has raised more than $4 million for pediatric cancer research since 2016.
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The Northern Nevada Children’s Cancer Foundation is celebrating 20 years of providing help, hope and courage to local children battling cancer. NNCCF is the only non-profit in the region solely dedicated to childhood cancer, and has provided $5.6 million in direct financial support to families. NNCCF’s programs and services include the Family Assistance Fund, Inspire survivorship program, Hope for the Holidays program and emotional support through end-of-treatment celebrations and family activities. For more information, call (775) 825-0888, visit www.nvchildrenscancer.org or follow on social media @NVKidsCancer.
On April 27, 2021, NNCCF helped make a difference in childhood cancer funding and research by participating in the virtual 2021 Childhood Cancer Action Day with the Alliance for Childhood Cancer. We joined more than 250 advocates from 37 states to ask Congress to fully fund the STAR Act, the most comprehensive childhood cancer bill in history, for the fourth straight year.
Due to our collective efforts and advocacy, the House Appropriations Committee set aside $80 million for childhood cancer research programs in 2022 which fully funds the STAR Act. It is a huge step in the federal funding process and we will continue to make childhood cancer a national priority.
NNCCF staff and families virtually met with members and staffers in the healthcare jurisdiction to urge this support. In attendance were NNCCF survivor Kalia and her mom Jenna, survivor Landen and his parents Debbie and Craig, Tiffany, a mother of survivor Felina, and survivor Katie and her mother Lynn. NNCCF was able to meet with Rep. Amode staff, Rep. Lee, Sen. Cortez Masto and Sen. Rosen staff.
During the meetings, Debbie, Landen’s mother, urged representatives to continue support, “Please help us fight this plague that is cancer and give our children promise for a better life; allow them to grow and fulfill their dreams,” she said.
Landen was diagnosed with and aggressive bone and soft tissue tumor in February 2020. During ten months of intense treatment a small list of what he endured included 34 weeks of chemotherapy, 28 radiation treatments, more than 12 blood transfusions, five surgeries, five months with an open wound on his shoulder and four emergency trips to the E.R.
“Landen is a fighter. He is the epitome of grace, strength, and courage, he is our hero. And he, like all other children impacted by this horrible disease, deserves a future,” said Debbie.
1 out of 264 children will be diagnosed with childhood cancer in the United States, before the age of 20, and because of the treatments they received, by age 50, more than 99% of childhood cancer survivors have a chronic health problem and 96% have severe or life-threatening conditions.
“We cringe every time Landen’s oncologist reminds us that due to his treatment Landen at 16-years-old has the heart of a 35 to 40 year old,” said Debbie. “Federal funding for databases and research is so important for these children with these rare diseases. Without this funding doctors will continue to simply prescribe the same toxic treatment that fails to save enough children and leaves those that do survive with lasting effects.”
On June 5, 2018, the STAR Act, was signed into law. In the last three years, Congress provided $30 million each year to fund the programs created by the STAR Act. The STAR Act stands for: Childhood Cancer Survivorship, Treatment, Access and Research. “It expands opportunities for childhood cancer research, improves efforts to identify and track childhood cancer incidences, and enhances the quality of life for childhood cancer survivors,” said the Alliance for Childhood Cancer.
NNCCF recognized the need for more advocacy and research to find a cure and has advocated at each Childhood Cancer Action Day on Capitol Hill since 2006.
Press Release –
Governor Steve Sisolak Signs Proclamation Declaring September as Childhood Cancer Awareness Month
(Reno, NV) – Governor Steve Sisolak signed a proclamation declaring September as Childhood Cancer Awareness Month. The Northern Nevada Children’s Cancer Foundation (NNCCF) worked with organizations in southern Nevada, the Nevada Cancer Coalition, Candlelighters and Cure 4 the Kids Foundation, to achieve this state proclamation.
“Support on a national, state and local level is crucial to helping children battling cancer in Nevada” said NNCCF Executive Director Shirley Folkins-Roberts. “Our state has embraced the fight of these brave children and this declaration is a large step in helping families fight this terrible disease.”
Nationally, one out of 285 children will be diagnosed with cancer before the age of 20 and approximately 44 children in northern Nevada are diagnosed each year.
This state declaration was accompanied by two additional local government declarations in Nevada signed by the City of Reno mayor, Hillary Schieve, and City of Fallon mayor, Ken Tedford.
Hundreds of non-profit organizations at the local and national level are helping support a cure for childhood cancer. NNCCF has collaborated with the national Children’s Oncology Group to increase funding for childhood cancer research, and hosts an annual event to raise money for the St. Baldrick’s Foundation, which is the largest private funder of pediatric cancer research.
To find out more information or read the state proclamation, visit nvchildrenscancer.org/proclamation
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The Northern Nevada Children’s Cancer Foundation is the only non-profit in the region solely dedicated to helping local children and their families affected by childhood cancer. NNCCF’s programs and services include the Family Assistance Fund, Inspire survivorship program, Hope for the Holidays program and emotional support through end-of-treatment celebrations and family activities. For more information, call (775) 825-0888, visit www.nvchildrenscancer.org or follow on social media @NVKidsCancer.
State of Nevada
Executive Department
A Proclamation by the Governor
WHEREAS, according to the World Health Organization, cancer is a leading cause of death for children around the world, and approximately 300,000 children aged 0 – 19 years are diagnosed with cancer each year; and
WHEREAS, according to the Nevada Department of Health and Human Services, each year in the United States, nearly 15,550 children under the age of 20 are diagnosed with cancer, and in 2017, 158 children living in Nevada were diagnosed with cancer; and
WHEREAS, a child cancer diagnosis is a family diagnosis and a tremendous emotional burden for the family and child to bear: and
WHEREAS, the Silver State recognizes and thanks organizations across the state that have provided emotional support, as well as direct financial assistance, to local families to ease their emotional and financial burdens; and
WHEREAS, educating Nevadans about childhood cancer is essential to generating federal and private funding of childhood cancer research; and
WHEREAS, Childhood Cancer Awareness month provides an opportunity to educate our communities and raise awareness about Childhood Cancer, and the international symbol of childhood cancer is the gold ribbon;
Now, therefore, I, Steve Sisolak, Governor of the state of Nevada, do hereby proclaim September as
Childhood Cancer Awareness Month in Nevada
Office of the Mayor
City of Reno
Proclamation
WHEREAS, childhood cancer is the #1 disease-related killer of our nation’s children; and
WHEREAS, nationally one out of 285 Children in the U.S. will be diagnosed with cancer before the age of 20; and
WHEREAS, due to awareness and research 84 percent of children will survive a cancer diagnosis; and
WHEREAS, in northern Nevada approximately 44 children are diagnosed with cancer each year and approximately 120 children each year are fighting cancer and are in treatment; and
WHEREAS, in 20 years the Northern Nevada children’s Cancer Foundation (NNCCF0 has provided over 5.3 million dollars in direct financial assistance to local families to ease the tremendous emotional and financial burden for the family; and
WHEREAS, Northern Nevada has embraced the fight of these brave children and provided support and assistance to families burdened by this horrible disease; and
WHEREAS, NNCCF is committed to raising awareness of childhood cancer in northern Nevada during the month of September and throughout the year,
Now, therefore, I, Hillary Schieve, Mayor of the City of Reno, Nevada, do hereby proclaim
The month of September as Childhood Cancer Awareness Month
Office of the Mayor
City of Fallon
Proclamation
WHEREAS, childhood cancer is the #1 disease-related killer of our nation’s children; and
WHEREAS, nationally one out of 285 Children in the U.S. will be diagnosed with cancer before the age of 20; and
WHEREAS, in northern Nevada approximately 44 children are diagnosed with cancer each year; and
WHEREAS, due to awareness and research 84 percent of children will survive a cancer diagnosis; and
WHEREAS, in northern Nevada approximately 120 children each year are fighting cancer and are in treatment; and
WHEREAS, in 20 years the Northern Nevada children’s Cancer Foundation (NNCCF0 has provided over 5.3 million dollars in direct financial assistance to local families to ease the tremendous emotional and financial burden for the family; and
WHEREAS, the international symbol of childhood cancer is the gold ribbon; and
WHEREAS, northern Nevada has embraced the fight of these brave children and provided support and assistance to families burdened by this horrible disease; and
WHEREAS, NNCCF is committed to raising awareness of childhood cancer in northern NEvada during the month of September and throughout the year,
Now, therefore, I, Ken Tedford, Mayor of the City of Fallon, Nevada, do hereby proclaim the month of September as:
Childhood Cancer Awareness Month
The Inspire Scholarship, which began in 2012, has awarded $465,000 to childhood cancer survivors in the northern Nevada region. In 2019, the program awarded a scholarship to 23 young adults pursuing higher education, vocational, or technical training. The Inspire Scholarship program has encouraged the community’s youngest cancer survivors to follow their dreams and become the strong and educated young men and women of our future generation.
Since the initial launch eight years ago, the Inspire Scholarship has helped with career dreams of applicants to become nurses, pilots, architects, beauticians, and much more. The Inspire Scholarship helps young adults who are currently in the fight, or who battled childhood cancer as a child, to see beyond their diagnosis and into the world of limitless possibilities.
Victoria Matthews, a recent Inspire applicant and childhood cancer survivor, wants to do more for the community now that she is cancer-free. Her ultimate goal is to become a pediatric hematologist-oncologist, and her cancer journey only solidified her dreams to help other kids just like her. In November of 2015, Victoria was diagnosed with cancer and immediately began a nine-month chemotherapy regimen, which took a toll not only on her body but her mind. “I would say that my greatest need before, during, and after cancer has been emotional support,” Victoria said.
The Inspire Scholarship provides emotional and financial support for young adults like Victoria who have been through serious physical, emotional, and financial challenges that may arise during the duration of their treatment process. Victoria’s aggressive chemo schedule forced her to take time away from school to focus on her treatment. She felt she could no longer live a normal teenage life because she missed out on everything due to her diagnosis.
Victoria’s battle with childhood cancer was one of the toughest times in her life, but she continued to fight so she could spend the rest of her life inspiring those around her. When she was just five-years-old, Victoria knew she wanted to be a doctor, and her cancer diagnosis only motivated her further to achieve her dreams. “I just really want to help kids,” Victoria said. “It’s something kids shouldn’t have to go through, but if I can help them, even just a little bit and be the kind of hero my doctors and nurses have been for me, that’s my goal.”
Victoria’s cancer journey taught her to appreciate life and never take anything for granted. She is currently studying cellular and molecular biology at the University of Nevada, Reno to accomplish her aspiration of becoming a pediatric oncologist.
From the moment of a child’s diagnosis, NNCCF works with the family to meet their needs. This can range from financial support for medical bills, travel to and from treatment, and educational support through the Inspire Scholarship or E-SMART programs. The Inspire Scholarship ensures that the child never gives up hope for a bright future.
The 2020 Inspire Scholarship application deadline is right around the corner, and all applications are due May 8, 2020. Young adults are encouraged to apply for the scholarship if they meet the criteria below:
Article By:
Allison Kibbe, NNCCF Marketing Intern
Press release –
(Reno, NV) – Today, May 5, 2020, the Northern Nevada Children’s Cancer Foundation (NNCCF) hosted a superhero themed “No More Chemo” parade for Brady, a local 5-year-old boy, who recently completed treatment for childhood cancer. Washoe County Sheriff’s Office, Reno Police Department and Reno Fire Department participated in the parade which included patrol cars, motorcycles, SWAT truck, and fire engines. There was also a special cameo appearance from Brady’s favorite superhero, Iron Man.
“In light of what is going on in the world, the celebration parade for Brady today was one of the coolest things we have ever experienced.” said Nicole, Brady’s mother. “Brady has endured so much in the last three years. It brought so many tears of joy to see his happiness and be able to watch him ring the bell.”
Brady rang the bell on his driveway with his parents and siblings, as his friends, family, the NNCCF team, and community supporters, drove by in a parade to celebrate his completion of treatment for childhood cancer. Each ring of the bell paid tribute to every appointment, infusion, surgery, and more that he and his family endured throughout their cancer journey. Brady was given the nickname “Iron Man Brady” during treatment and has showed his bravery and resilience every day since.
“The amount of love and support this community has shown Brady and our family is something we will forever be grateful for. They have made this cancer journey bearable from beginning to end,” said Nicole. “We want to thank our family, friends new and old, NNCCF, Washoe County Sheriff’s Office, Reno Police Department, Reno Fire Department, SWAT, Iron Man, Lion and Lamb staff and classmates for making this a day we will never forget.”
In 2014, NNCCF established a bell ringing tradition to help children and their families celebrate the end of their childhood cancer treatments. The celebrations are typically held in the NNCCF office where a large, silver, “No More Treatment” bell is mounted. However, due to the COVID-19 pandemic and social-distancing restrictions, Brady’s family and NNCCF crafted a different way to celebrate. NNCCF cleaned and delivered their portable bell to the Brady family prior to the celebration.
“During this time of quarantine, we are so happy to be able to celebrate this milestone with a social distancing celebration involving so many of our community partners,” said Shirley Folkins-Roberts, NNCCF executive director. “Our bell ringings and ‘No More Treatment’ celebrations are a symbol of hope for our families – It was a long-awaited milestone for Brady and his family, and we are proud to celebrate this moment with him.”
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The Northern Nevada Children’s Cancer Foundation is the only non-profit in the region solely dedicated to helping local children and their families affected by childhood cancer. NNCCF’s programs and services include the Family Assistance Fund, Inspire survivorship program, Hope for the Holidays program and emotional support through end-of-treatment celebrations and family activities. For more information, call (775) 825-0888, visit www.nvchildrenscancer.org or follow on social media @NVKidsCancer.
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https://twitter.com/NVKidsCancer/status/1257792972667490304
Today, members of the community along with local first responders participated in a parade celebrating the end of cancer treatment for 5-year-old Brady. WAY TO GO!
@NVKidsCancer #endoftreatmentbell #hero #warrior pic.twitter.com/jMzTgvfb50— Washoe Sheriff (@WashoeSheriff) May 5, 2020
5 year-old Brady kicked #cancer in the butt!! To celebrate his bravery and courage our Reno community came together to say GREAT JOB BRADY with a parade full of family, friends and all kinds of Superheroes!! pic.twitter.com/Sp3PBIvAvI
— Reno Police (@RenoPolice) May 5, 2020
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