Meet Zane, our #WarriorWednesday! After unexplained vomiting and weakness led to a pineoblastoma diagnosis, Zane has faced multiple brain surgeries, radiation, and chemotherapy. Despite it all, Zane remains a bright light, spreading joy and smiles wherever he goes. His strength and positivity are truly inspiring.  Read more about his story as told by his mom below:

Tell us about your warrior and their journey: 

What started out as what we thought was unexplained vomiting turned into unexplained weakness, which in the end turned out to be Pineoblastoma.
On October 5th, we came into the ER at Renown and then were life-flighted out to Utah. We got to the ER doctor for a CT Scan and found a large tumor on his third ventricle. Within 2 weeks, he had 3 brain surgeries and another 1 by the end of the month. We then got the news from pathology that he also has the rare gene malformation called Dicer1, which is something that puts him at higher risk for multiple forms of cancer. We ended up testing his siblings and mother and found that they, too, have the gene.
Zane then went under 6 weeks of proton radiation and is now in the process of 6 months of chemotherapy. He is a ray of sunshine through all of this. He is a true warrior. He can brighten up every room he walks into. Even though he has had to undergo multiple surgeries and transfusions and has lost all of his hair and lots of weight, he still walks around with a big smile on his face, which is absolutely contagious.

How has NNCCF impacted your family’s journey?

Thanks to NNCCF, our family has been able to keep our focus on Zane and his needs and truly enjoy every moment with him. Without their help, I’m not sure how we would have gotten this far.

Is there anything you would like to add?

I want to thank everyone who has helped and supported my son and our family through all of this. I know we are nowhere done with this nightmare, but to have the amount of support we have by our side is absolutely incredible and much appreciated.

Donate to help a warrior like Zane today!